John Fenley

Living with Multiple Sclerosis: a Caregiver's Story John Fenley

My caregiver training started early in life, extended through the 44 years after Eileen was diagnosed as having multiple sclerosis, and did not end until her death in 2001. At home, I provided full care to her, planned and thought ahead, but always was willing to sacrifice my personal freedom, and to suffer frequent heartbreak. As a caregiver I received a lifetime of gratitude from Eileen, to give me satisfaction of having successfully met her daily MS demands. The early training I received in childhood coincided with the years of the Great Depression, from the late 1920's, through the 1930's, and the first years of the 1940's. During that time I had the least possible financial assistance from anybody, yet I became an unpaid electrician, plumber, carpenter, auto repairer a Mr. Fixit for the entire Fenley family. The four years I served in the US Army were very pleasant, advancing from private to major, in an endless procession of challenging but interesting extra duties, in addition to my regular ones. These I describe as my lucky Army breaks. I have bared my soul. Happy reading!